Back in the Burgh!!!

Ian is back “home” at CHP!!!  Our transport to Pittsburgh went well.  I even got to hold Ian for a fair amount of the flight.  He was crabby, but a totally different situation than the flight over.  The transport team was excellent – no big surprises there!

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A big huge thank you to the doctors, nurses and therapists at Mott.  So super wonderful.  We are so grateful for the care and hospitality.  Oh – and for the little splint that is making it so much easier for Ian to breathe!

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Ian has had a week packed FULL of ups and downs.  He started off the week being welcomed back to the CICU with open arms.  Its strange to show up at a hospital with your 6 month old in an ambulance and be grinning from ear to ear.

 

Little man started off the week with a wean to the ventilator and an hour and a half trach mask trial.  Then he plugged his trach and we had to do an emergency trach change.  This is something that can happen to kids with trachs.  Because the trach is plastic it collects mucus, which is why we have to suction it throughout the day.  Sometimes the secretions can get a little thick and get stuck in the trach.  This was a first for Ian, but we are really really glad it happened in the hospital and glad that both Justin and I were standing right there so that we don’t panic if/when it happens at home.

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Fast forward to the remainder of the week.  Ian was really not feeling well at all.  He was waking up crying every time and pretty inconsolable unless he was being held.  Even when he was being held he wasn’t happy – just content.  It turns out his mid sternal incision is still infected.  I have to be honest it has been really tough because we came back to Pittsburgh with such high hopes that he was doing so well that we would be home soon.  When we didn’t really know what was wrong it was really frustrating.  He has now been back on antibiotics for over 24 hours and is back to his happy self.  He slept well last night and woke up with a smile :).

Owen had a great time this weekend having both of us at home.  He played a ton outside with our neighbor’s granddaughter.

imageLets hope this is the start to a much better week.  We have a jammed packed schedule of training and things to do to prepare for Ian to come HOME!!

2 Comments

Andrea (Purple team NP at Mott)

about 10 years ago

So glad to hear he made it well! I came back from a few days off work and got a little sad when he wasn't still here! Hope he continues to do well!

Reply

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