I have to apologize to those of you that follow us through the blog only.  For some reason I got locked out for the last two weeks and couldn’t do any updates.

SO – IAN IS HOME

Ian was realeased from CHP 2 weeks ago tomorrow.  Last weekend we did have a brief readmission for fluid.  He is doing SO great.  He is happy, smiling and playing.  Its super busy having him home again.  He is on a TON of meds and gets breathing treatments at least 4 times a day.  It’s like we have a little mini ICU right in our house.  But it is worth every single second!!  Our home nurses have been great.  We mostly have the same people as when we were home before, which is really nice because we know them and they know Ian.  And Ian is MUCH easier, and more fun than he was the last time he was home.  People ask all the time what kind of help we get at home.  We get 10 hours of nursing during the day so that Justin and I can work.  Right now one of us always works from home so that we are here in case they have any questions.  We also get 8 hours at night so that we can sleep.  All kids who have trachs get night nursing b/c they need someone to be watching at all times to make sure they are okay.  Ian can’t cry over his trach yet, so we would never hear him if he was in distress.

So – now we start living our new normal (hopfully).  Last December when I was talking to one of my managers, I was telling him that after Ian’s cath, things should get more normal again.  I couldn’t have been more wrong by the way…  He has a son who has had some pretty serious health problems.  He said – there will be a new normal.  I honestly just thought – oh yeah  things will be different.  NOW I know what he meant.  We will never look at life the same.  Everything is completely different.

Please continue to keep Ian and our family in your prayers.  The longer he can stay home and healthy, the better off he will be.  Getting sick is a HUGE deal for Ian.  So if we can delay that even months, he will be SO much stronger.