I don’t really know where to start, so I will start with what I only realized the week that it happened.  Ian spent his first holiday at home since Christmas Day 2013 when he was just six weeks old.  We spent Easter Sunday together – in our own house.  Our two boys dyed eggs together, got their baskets together, and found eggs together.  We ate as a family outside the walls of a hospital.  Actually – we ate outside – since it was a beautiful day.  AND Ian sat unassisted with his brother and their baskets.  He had done it for a few minutes on the Friday before Easter, but on Easter Sunday he decided he could really do it and he showed his stuff pretty much all day.

Sitting was a six month goal for us with PT/OT.

We have been playing, going outside, sitting, practicing standing for strength, weaning meds, weaning o2 and always smiling.  Ian’s only issue right now is reflux.  He has at least one good spit up a day and lots of gagging.  We just switched his reflux meds and he seems better, but not great.  The crazy part – he throws up and then he gets right back to business – playing.

We have great nurses so Justin and I are able to work – life is good!

Our plans for this summer are to wean the vent a little bit more, wean oxygen and enjoy our boys.

Last but not least – we will be doing the Congenital Heart Walk on June 28th and we would love a huge team again.  This year we will be a bit more organized now that we know the lay of the land.  We will have team t-shirts, so if you plan to walk, join our team so I have a count.  And if you can’t walk, consider donating.  Ian would not be where he is today without wonderful doctors and RESEARCH.  Money for research comes from awareness.  It is unbelievable to me how many people are affected by Congenital Heart Defects and Diseases.

Congenital Heart Walk – Ian’s Infantry Team Page